This week I’ve had to accept the fact that there is a chance that our little guy will need to go under general anaesthetic in the next 6 months.
Petrified doesn’t really seem like a strong enough word to explain how this makes me feel.
Archer’s tongue-tie was detected at birth but the seriousness of it wasn’t truly noted until he was about 6 days old. We were referred to a pediatric surgeon with the understanding that there would be a very simple procedure done in that one appointment to fix his tongue-tie and off we would go. Apparently not.
In filling out the pre appointment medical survey, I told the doctor of the history of Von Willebrands in my family (my niece has the condition). This in itself is not an overly serious diagnosis. If the disease is present, prior to any surgery, treatment is given to ensure the blood clots correctly to avoid excessive bleeding.
Prior to this appointment I hadn’t even considered that my son my have this disease. I certainly hadn’t considered the fact that the tongue-tie snip may be a procedure that could be dangerous if he did have Von Willebrands. I’m thankful for the cautious nature and thoroughness of our doctor in detecting this as a concern!
Long and short of it is, they can’t test Archer for the Von Willebrands until he is 6 months old. They wont cut his tongue-tie until they eliminate Von Willebrands. Once he is older than 12 weeks, they wont do the tongue-tie procedure unless he is under a general anesthetic. Catch fucking twenty two.
So, what we decided to do was to test N and I to see if we are carriers of the disease (highly unlikely N is, the gene is in my family – but better to be safe than sorry!). Essentially, if we aren’t carriers, Archer can’t have the disease and snip snip we go. About a litre of blood taken later and as expected, N’s results are negative. Mine are inconclusive. Fuck fuck fuck.
We now have a referral to a hematologist for me to see if we can eliminate me as the carrier. Its not looking good but I will be doing everything in my power to beat the clock in getting some sort of result.
So the countdown is on. 7 weeks to go and I need to – get an appointment with the hematologist, discount me as a carrier (fingers crossed), get an appointment back at the pediatric surgeon and get my little dudes tongue fixed.
Or its general anesthetic time in October.
It terrifies me to think that Archer would have to have any sort of procedure. But the thought of him having a general anesthetic in his tiny body makes me feel ill.
I know its not a definite yet and there is no point getting anxious over something that may not happen but I am allowing myself to mentally prepare for the just in case. In the meantime, a warning to the hematologist and pediatric surgeon – I will be stalking you for appointments daily until I can get this resolved – the clock is ticking!
Have any of you lovely readers had to face surgery for your little ones?
Ps… you can learn more about Von Willebrands here